075|Liz Ryan - Podcast Interview
The more you reach out . . . the more you tell your story . . . the more you share . . . the more will come back to you. -Liz Ryan
In this episode, we hear the story of a mom whose son has a rare, incurable and potentially deadly disease. Meet Liz Ryan, wife, mother of two, career woman and first generation American. What started as flu-like symptoms in January 2018 turned out to be Juvenile Myositis. For nearly 4 months, Liz and her husband watched their once laughing, curious, active 4 year old boy turn into a child who couldn’t walk, sit up, or even lift his head off the pillow. Liam’s diagnosis requires regular plasma transfusions, steroids and a low dose chemotherapy drug. Now 5, Liam is often tired, but always joyful. Born to Vietnam refugees who fled their country through Cambodia’s infamous “killing fields”, Liz shares her parent’s powerful work ethic as the impetus for her own determination to save her son’s life. She and her husband Luke have joined forces with a non-profit called The Cure JM Foundation whose mission is to spread awareness about the disease. Their website is www.CureJM4Liam.com. The chances of being hit by lightening are 1 in 500,000 and that is the same chance a child has of getting JM. By sharing their son Liam’s story, Liz and Luke are determined to support and offer encouragement to kids with JM and their families with love, hope and care. @Boston25 @bostonwomeninmediaandentertainment
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